FeedsOrganizations that Can Help: A Searchable Directory: Search Results
Below is a list of organizations that can help: a searchable directory that match
country: United States; services: Advocacy
(Organizations are listed alphabetically by name and then state.)
Breast Cancer Network of Strength
(more information)135 S. LaSalle St
Suite 2000
Chicago, IL 60603
(800) 221-2141
(312) 986-8338
Web site: www.networkofstrength.org
The cornerstone of this organization has been and continues to be peer support. In order to strengthen the identity of our core services, we introduced YourShoes™ 24/7 Breast Cancer Support Center. YourShoes services include our 24/7 hotline with real-time interpretation in more than 150 languages, peer support via our Web site, and support groups led by trained facilitators. All YourShoes services are conducted by breast cancer survivors. The words of one of our callers nicely sums ups the value of peer support: "Even though my family is a wonderful support system, I needed someone who had been in my shoes."
Cancer Legal Resource Center
(more information)Loyola Law School
919 Albany Street
Los Angeles, CA 90015-1211
(866) 843-2572
(213) 736-1455
Web site: www.cancerlegalresourcecenter.org
The Cancer Legal Resource Center provides information and resources on cancer-related legal issues to cancer patients, survivors, caregivers, health care professionals and others touched by cancer.
Candlelighters Childhood Cancer Foundation
(more information)P.O. Box 498
Kensington, MD 20895-0498
(800) 366-2223 (1-800-366-CCCF)
(301) 962-3520
Web site: www.candlelighters.org
Provides support, information and advocacy for families of children with cancer, survivors of childhood cancer and the professionals who work with them.
Children's Organ Transplant Association, Inc. (COTA)
(more information)2501 West COTA Drive
Bloomington, IN 47403
(800) 366-2682
(812) 336-8872
Web site: www.cota.org
The Children's Organ Transplant Associaton (COTA) helps families nationwide by raising funds used to pay transplant-related expenses. COTA works with children and young adults who need or have had a life-saving transplant. 100% of all funds raised for transplant patients are used for transplant-related expenses.
CureSearch
(more information)4600 East West Hwy
# 600
Bethesda, MD 20816
(800) 458-6223
(626) 447-1674 198
Web site: www.curesearch.org
Promotes education and advocacy for the needs of children with cancer, in the belief that children with cancer and research on childhood cancer deserve higher national priority.
Equal Employment Opportunity Commission
(more information)(800) 669-4000
Web site: www.eeoc.gov
Provides information on job discrimination.
Fertile HOPE
(more information)P.O. Box 624
New York, NY 10014
(888) 994-4673 (1-888-994-HOPE)
(212) 242-6798
Web site: www.fertilehope.org
Fertile Hope is dedicated to providing reproductive information, support and hope to cancer patients whose medical treatments present a risk of infertility.
Gilda's Club Worldwide
(more information)48 Wall Street
11th Floor
New York, NY 10005
(888) 445-3248 (1-888-GILDA-4-U)
(917) 305-1200
Web site: www.gildasclub.org
Cancer support community where men, women and children with cancer and their families and friends join with others to build social and emotional support as a supplement to medical care in free, nonresidential, home-like setting.
Health and Healing Resource Center
(more information)2040 Webster Street
San Francisco, CA 94115
(415) 600-3681
Web site: www.myhealthandhealing.org
A comfortable place where you can read and do your own research on integrative and conventional medicine, the Center also offers classes and a community meeting space. Center hours are 1-5pm, Tues-Fri.
Hope Street Kids
(more information)1600 Duke Street
Suite 500
Alexandria, VA 22314
(800) 227-2732
(703) 836-4412
Web site: www.hopestreetkids.org
The mission of Hope Street Kids is to eliminate childhood cancer through advocacy, education, and pioneering research, and to help support children with cancer and their families during and after treatment.
Immune Deficiency Foundation
(more information)40 W. Chesapeake Avenue
Suite 308
Towson, MD 21204
(800) 296-4433
(410) 321-6647
Web site: www.primaryimmune.org
The Immune Deficiency Foundation, founded in 1980, is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.
Lymphoma Foundation of America
(more information)1100 N Main Street
Ann Arbor, MI 48103
(734) 222-1133
Web site: www.lymphomahelp.org
Lymphoma Foundation of America is the national organization devoted solely to helping lymphoma patients and families: support groups, second opinions, counseling, referrals, research, new treatments and patient's rights.
Lymphoma Research Foundation (LRF)
(more information)8800 Venice Blvd.
Suite 207
Los Angeles, CA 90034
(800) 500-9976
(310) 204-7040
Web site: www.lymphoma.org
LRF is the nation's largest lymphoma-focused voluntary health organization devoted to funding research to cure all lymphomas and providing patients and health care professionals with critical information on the disease.
National Association for Home Care & Hospice
(more information)228 Seventh Street S.E.
Washington, DC 20003
(202) 547-7424
Web site: www.nahc.org
Association that represents home care and hospice agencies that provide services to patients. The Association can provide referrals to area home care and hospice agencies.
National Brain Tumor Society
(more information)22 Battery Street
Suite 612
San Francisco, CA 94111-5520
(800) 770-8287
(800) 934-2873
Web site: www.braintumor.org
National Brain Tumor Society(NBTS) is a leader in the brain tumor community, bringing together the best of research and patient services to be a comprehensive resource for patients, families, caregivers, researchers, and medical professionals. NBTS offers top-notch resources and caring support for everyone affected by brain tumors. We provied education and information to help patients, families, and caregivers make informed decisions and develop strong support systems during every stage of the journey - from diagnosis through treatment to end of care and survivorship.
National Children's Cancer Society
(more information)One South Memorial Drive
Suite 800
St. Louis, MO 63102
(800) 532-6459 (1-800-5-FAMILY)
(314) 241-1600
Web site: www.nationalchildrenscancersociety.org
To improve the quality of life for children with cancer and their families worldwide.
National Coalition for Cancer Survivorship (NCCS)
(more information)1010 Wayne Avenue
Suite 770
Silver Springs, MD 20910
(877) 622-7937 (1-877-NCCS-YES)
(301) 650-9127
Web site: www.canceradvocacy.org
Provides publications and referrals; national advocate for the rights of cancer patients and survivors.
National Foundation for Transplants (NFT)
(more information)5350 Poplar Avenue
Suite 430
Memphis, TN 38119
(800) 489-3863
(901) 684-1697
Web site: www.transplants.org
NFT assists transplant patients overcome financial obstacles to their medical treatment by providing advocacy and financial assistance through fundraising and grant programs.
National Lymphedema Network (NLN)
(more information)1611 Telegraph Avenue
Suite 1111, Latham Square
Oakland, CA 94612-2138
(800) 541-3259
(510) 208-3200
Web site: www.lymphnet.org
To provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.
National Marrow Donor Program
(more information)Suite 500
3001 Broadway Street N.E.
Minneapolis, MN 55413
(888) 999-6743
(612) 627-5800
Web site: www.marrow.org
The National Marrow Donor Program (NMDP) helps people who need a life-saving marrow or blood cell transplant by connecting patients, doctors, donors and researchers to resources they need to help more people live longer, healthier lives. To achieve its mission, NMDP: 1) Searches the NMDP Registry -- the largest listing of volunteer donors and cord blood units in the world; 2) Supports patients and their doctors throughout the transplant process; and 3) Matches patients with the best donor or cord blood unit using innovative science and technology.
Neuroblastoma Children's Cancer Society
(more information)P.O. Box 957672
Hoffman Estates, IL 60195
(800) 532-5162
Web site: www.neuroblastomacancer.org
An advocate for children who suffer from neuroblastoma and is dedicated to serving as a support center for their families. Primary focus is to raise money for local research in neuroblastoma cancer.
Patient Advocate Foundation (PAF)
(more information)700 Thimble Shoals Blvd.
Suite 200
Newport News, VA 23606
(800) 532-5274
(757) 873-6668
Web site: www.patientadvocate.org
Patient liaison representatives work with patients and their caregivers to educate and empower them as well as mediate on their behalf to resolve denial of access to quality care, job retention and financial issues related to diagnosis.
Shwachman Diamond Syndrome Foundation
(more information)127 Western Avenue
Sherborn, MA 01770
(888) 825-7373
Web site: www.shwachman-diamond.org
Shwachman-Diamond Syndrome Foundation is a patient advocacy organization whose goals are to advocate and support research towards a cure for this disease and link families for emotional support and supply them with the most current medical information available.
Sickle Cell Disease Association of America, Inc.
(more information)231 East Baltimore Street
Suite 800
Baltimore, MD 21202
(800) 421-8453
(410) 528-1555
Web site: www.sicklecelldisease.org
To advocate for and enhance our memberships' ability to improve the quality of life and services for indivduals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease.
SuperSibs!
(more information)5005 Newport Drive
Suite 502
Rolling Meadows, IL 60008
(866) 444-7427
(847) 705-7427
Web site: www.supersibs.org
SuperSibs is a national non-profit whose mission is to ensure that the brothers and sisters of children with cancer are honored, supported and recognized.
The Children's Cause, Inc.
(more information)1010 Wayne Avenue
Suite 770
Silver Springs, MD 20910
(301) 562-2765
Web site: www.childrenscause.org
The Children's Cause is dedicated to ensuring that patient, survivor, and family perspectives are offered in national activities, forums, legislation and debates that have implications on the care and treatment of children and adolescents with cancer.
Ulman Cancer Fund for Young Adults
(more information)PMB 505
4725 Dorsey Hall Dr., Suite A
Ellicott City, MD 21042
(888) 393-3863 (1-888-393-FUND)
(410) 964-0202
Web site: www.ulmanfund.org
To provide support programs, education and resources free of charge to benefit young adults, their families and friends, who are affected by cancer and to promote awareness and prevention of cancer.
Visiting Nurse Association of America (VNAA)
(more information)900 19th Street NW
Suite 200
Washington, DC 20006
(202) 384-1420
Web site: www.vnaa.org
Provides referrals to local Visiting Nurse Associations, which provide home care.
World Wide organizations that offer the selected services.
(Organizations are listed alphabetically by name.)American Brain Tumor Association
(more information)2720 River Road
Suite 146
Des Plaines, IL 60018-4110
(800) 886-2282
(847) 827-9910
Web site: www.abta.org
The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.
American Cancer Society
(more information)National Headquarters
250 Williams Street
Atlanta, GA 30303
(800) 227-2345 (1-800-ACS-2345)
Web site: www.cancer.org
ACS is a health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
American Pain Society
(more information)4700 W. Lake Avenue
Glenview, IL 60025
(847) 375-4715
Web site: www.ampainsoc.org
The American Pain Society is a multidisciplinary community that brings together a diverse group of scientists, cliicians and other professionals to increase the knowledge of pain and transform public policy and clinical practice to reduce pain-related suffering.
American Society for Blood and Marrow Transplantation (ASBMT)
(more information)85 W Algonquin Road
Suite 550
Arlington Heights, IL 60005-4460
(847) 424-0224
Web site: www.asbmt.org
ASBMT is a national professional association representing the interests of cellular therapy and blood and marrow transplantation investigators, clinicians and the patients they serve.
Aplastic Anemia & MDS International Foundation, Inc.
(more information)100 Park Avenue
Suite 108
Rockville, MD 20850
(800) 747-2820
(301) 279-7202
Web site: www.aamds.org
AA and MDSIF serves as a resource for patient assistance, advocacy and support. Provides educational materials and medical information, supports research to find treatments and a cure for aplastic anemia, myelodsplastic syndromes and paroxysmal nocturnal hemoglobinuria.
Asians for Miracle Marrow Matches (A3M)
(more information)244 S San Pedro St
Suite 503
Los Angeles, CA 90012
(888) 236-4673 (1-888-A3M-HOPE)
(213) 625-2802
Web site: www.asianmarrow.org
Asians for Miracle Marrow Matches offers hope to patients/families with diseases treatable by marrow or blood cell transplants. Bilingual staff members serve as a resource for patients and ethnic communites. Major Activities: outreach & education, donor drives, resource service, culturally appropriate patient and family services, language assistance.
Association of Oncology Social Work
(more information)100 N 20th Street
4th Floor
Philadelphia, PA 19103
(215) 599-6093
Web site: www.aosw.org
To promote excellence in psychosocial oncology by offering educational programs that support clinical, administrative and research skill development, advocating for programs and policies that provide psychosocial care to patients and families.
Blood & Marrow Transplant Information Network
(more information)2310 Skokie Valley Road
Suite 104
Highland Park, IL 60035
(888) 597-7674
(847) 433-3313
Web site: www.bmtinfonet.org
Strives to provide high quality medical information in easy-to-understand language, so that bone marrow and blood cell transplant patients can be active, knowledgeable participants in their health care planning and treatment.
Cancervive
(more information)9006 Rosewood Ave
Los Angeles, CA 90048
(800) 486-2873
(310) 203-9232
Web site: www.cancervive.org
Cancervive was founded in 1985 by childhood cancer survivor Susan Nessim. Cancervive provides support, education, and advocacy to cancer patients, survivors and health professionals.
Center for International Blood and Marrow Transplant Research
(more information)CIBMTR
9200 W Wisconsin Avenue
Suite C5500
Milwaukee, WI 53226
(414) 805-0700
Web site: www.cibmtr.org
Collects and analyzes information and results of bone marrow transplants using data provided by institutions worldwide. Publications available about transplant applications and outcomes.
Children's Hospice International
(more information)1101 King Street
Suite 360
Alexandria, VA 22314
(800) 242-4453 (1-800-242-CHILD)
(703) 684-0330
Web site: www.chionline.org
Founded to promote pediatric hospice care, to encouraging the inclusion of children in existing and developing hospice and home care programs and by including the hospice care perspective in standard pediatric care.
Fanconi Anemia Research Fund
(more information)1801 Willamette Street
Suite 200
Eugene, OR 97401
(888) 326-2664 (1-888-Fanconi)
(541) 687-4658
Web site: www.fanconi.org
Mission: To find effective treatments and a cure for Fanconi Anemia, and to provide education and support services to affected families worldwide.
International Myeloma Foundation (IMF)
(more information)12650 Riverside Drive
Suite 206
North Hollywood, CA 91607-3421
(800) 452-2873
(818) 487-7455
Web site: www.myeloma.org
Founded in 1990, the International Myeloma Foundation is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure for multiple myeloma.
Lance Armstrong Foundation
(more information)2201 East 6th Street
Austin, TX 78702
(512) 236-8820
Web site: www.livestrong.org
Founded in 1997 by cancer survivor and champion cyclist Lance Armstrong, the Lance Armstrong Foundation unites people to fight cancer. The Foundation empowers cancer survivors to live life on their own terms and raises awareness and funds for the fight against cancer. Unite and fight cancer at LIVESTRONG.org.
Leukemia & Lymphoma Society
(more information)1311 Mamaroneck Avenue
White Plains, NY 10605
(800) 955-4572
(914) 821-8888
Web site: www.lls.org
Dedicated to finding cures for leukemia, lymphoma, Hodgkin's lymphoma and myeloma and improving the quality of life of patients and their families. Supports medical research, support services, and provides health education materials.
Multiple Myeloma Research Foundation (MMRF)
(more information)383 Main Avenue
Fifth Floor
Norwalk, CT 06851-1543
(203) 972-1250
Web site: www.multiplemyeloma.org
The Multiple Myeloma Research Foundation (MMRF) was established in 1998 as a 501(c)3 non-profit organization by twin sisters Karen Andrews and Kathy Giusti, soon after Kathy's diagnosis with multiple myeloma. The mission of the MMRF is to urgently and aggressively fund research that will lead to the developlment of new treatments for multiple myeloma. As the world's number-one private funder of multiple myeloma research, the MMRF has raised more than $100 million since its inception to fund more than 90 laboratories worldwide. The payback on its investment has been significant, including the approval of four new treatments in four years alone. Today, the MMRF is supporting 30 new compounds and approaches now in clinical trials and pre-clinical studies and has facilitated more than 15 clinical trials through its sister organization, the Mulitple Myeloma Research Concsortium (MMRC).
My Friends Care Cancer Fund
(more information)148 S. Main Street
Suite 101
Mount Clemens, MI 48043
(586) 783-7390
Web site: www.myfriendscare.org
To provide expertise, support and education to families and friends raising funds to benefit cancer patients, who are facing financial hurdles for essential treatments, donor recruitment and/or donor searches; and to provide funding for community donor drives.
National Bone Marrow Transplant Link (nbmtLINK)
(more information)20411 W. 12 Mile Road
Suite 108
Southfield, MI 48076
(800) 546-5268 (1-800-LINK-BMT)
(248) 358-1886
Web site: www.nbmtlink.org
The mission of the National Bone Marrow Transplant Link is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.
National Brain Tumor Society
(more information)124 Watertown Street
Suite 2D
Watertown, MA 02472
(800) 770-8287
(617) 924-9997
Web site: www.braintumor.org
National Brain Tumor Society is a nonprofit organization inspiring hope and providing leadership within the brain tumor community. We exist to find a cure and improve the quality of life for those affected by brain tumors. We fund strategic research, deliver support services, and promote collaboration.
National Organization for Rare Disorders (NORD)
(more information)P.O. Box 1968
55 Kenosia Avenue
Danbury, CT 06813-1968
(800) 999-6673 (voicemail only)
(203) 744-0100
Web site: www.rarediseases.org
NORD is an information clearinghouse on rare diseases committed to the identification, treatment and cure of rare disorders through programs of Education, Advocacy Research & Service.
Oncology Nursing Society (ONS)
(more information)125 Enterprise Drive
RIDC Park West
Pittsburgh, PA 15275-1214
(866) 257-4667 (1-866-257-4ONS)
(412) 859-6100
Web site: www.ons.org
The mission of the Oncology Nursing Society is to promote excellence in oncology nursing and quality cancer care. Web site information for nurses and patients on cancer diagnosis, cancer treatment, specific diseases and other areas of interest.
Oregon Hospice Association
(more information)P.O. Box 10796
Portland, OR 97296
(888) 229-2104
(503) 228-2104
Web site: www.oregonhospice.org
A non-profit organization dedicated to ensuring and promoting access to high quality hospice and end of life care to all Oregonians.
R.A. Bloch Cancer Foundation, Inc.
(more information)One H&R Block Way
Kansas City, MO 64105
(800) 433-0464
(816) 854-5050
Web site: www.blochcancer.org
Provides a hotline that matches newly diagnosed cancer patients with someone who has survived the same kind of cancer. Offers free information, resources, and distributes lists of Multidiscplinary Second Opinion Centers. Offers free books "Fighting Cancer", "Cancer there's Hope," and "Guide for Cancer Supporters."
Well Spouse Association
(more information)63 W. Main Street
Suite H
Freehold, NJ 07728
(800) 838-0879
(732) 577-8899
Web site: www.wellspouse.org
An international nonprofit organization that provides emotional support for the millions of wives, husbands and partners of the chronically ill and or disabled.
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