NMDP Online Privacy Statement
The National Marrow Donor Program and Be The Match FoundationSM (collectively referred to for the purposes of his Online Privacy Statement as "NMDP" or "we") are committed to respecting your privacy. This Web site (www.marrow.org and/or www.BeTheMatch.org) has been structured so you can visit it without identifying yourself or revealing any personal information. If you choose to provide NMDP with personally identifiable information (any information by which you can be identified), you can be assured it will be used only to support your relationship with the NMDP.
This statement regarding the privacy of the information you provide online covers seven main areas:
On this page:
Awareness
We provide this Online Privacy Statement to make you aware of our privacy policy and practices and of the choices you can make about the way your information is collected and used. To make this notice easy to find, we make it available on the home page and from the bottom of every page on this site.
What We Collect
Web Statistics
As you browse through this Web site, the NMDP collects some non-personally identifiable data, such as:- The type of browser used to access the site
- The date and time of your visit
- The pages you visited
- The address of the Web site that referred you if you clicked a link to get to this site
The NMDP collects this information for statistical purposes and for evaluating this Web site to make it more useful to visitors.
If you have signed up to receive information by e-mail from the National Marrow Donor Program, Be The Match or Be The Match Foundation, the e-mail may contain a "click-through" URL. When you click one of these URLs, you pass through our Web server before arriving at the Web page that is your destination. We track click-throughs to help us determine your interest in particular topics and measure the effectiveness of our communications.
Personal Information
This Web site collects personally identifiable information only if you voluntarily submit it. On some pages, you can update your contact information, choose to provide an online contribution, order materials, join the registry, answer health questions or submit other requests. The personal information collected on these pages is your name and contact information. In some cases, you may submit additional information as needed to complete your request.
If you register online for the Be The Match Registry, we require that you provide certain personally identifiable information including your name, health information, address, phone number and credit card number. We need this information to process your registration and to contact you in connection with that registration. You may also be asked to provide additional health and contact information online if you are identified as a possible match for a patient.
If you choose to make an online financial contribution to National Marrow Donor Program through its fundraising partner, the Be The Match Foundation, those transactions are handled by Convio Inc., an Internet software and services company that provides online constituent relationship management solutions for nonprofit organizations. All information collected by Convio is encrypted and transactions are conducted through a secure socket layer (SSL). Convio will not disclose your name or any other personally identifiable information (such as your e-mail address) to any party other than the National Marrow Donor Program and Be The Match Foundation. Neither NMDP nor Convio store sensitive information such as credit card numbers. If you provide credit card information to make a financial contribution, that information is used solely for the purpose of completing that specific transaction and is not retained by NMDP or Convio.
We may also ask you to voluntarily provide us with information regarding your experience with cancer, personal or professional interests, demographics and contact preferences to tailor our subsequent communications with you and continuously improve our Web site and services.
We do not use persistent cookies (small text files stored on the users computer) and we cannot recognize returning users to the site.
How We Use It
When you choose to submit personally identifiable information to the NMDP, we use your information only for the purposes for which you submitted the information.
Occasionally, we may also collect information for market research. At a minimum, we will always give you the opportunity to opt in -- or choose to participate -- before being contacted for market research purposes.
Change of Address Requests
All information submitted to the NMDP via the Update Your Contact Information form will be forwarded from the NMDP Coordinating Center by e-mail to the donor center with which you are registered. A copy of the e-mail is retained at the NMDP Coordinating Center for back up purposes. The information provided will not be sold or given to any other organization outside of the NMDP Network of donor centers.Preliminary Search Requests
Physicians can submit preliminary search requests for their patients through this Web site. The contact information and patient diagnosis and demographic information submitted in a preliminary search request is entered into the NMDP STAR® (Search, Tracking and Registry) system and a preliminary search for potential donors is initiated. The STAR system is the secure, proprietary database system NMDP uses to facilitate all patient searches, track patient histories and maintain the Be The Match Registry of potential volunteer donors. Search results are not returned electronically but are sent to physicians by fax or by mail.Other Requests
When you submit other requests, such as materials requests, the NMDP uses your name and contact information for the sole purpose of completing your request. If you request materials, your name and contact information is kept in a limited-access database and is not sold or given to any other organization outside of the NMDP Network of centers.Who We Share It With
The NMDP will not sell, rent or lease your personally identifiable information to others.
Unless we have your permission or are required by law, the personal data you provide us online will be shared only with other NMDP entities and/or business partners who are acting on our behalf to complete the activities described above. Such NMDP entities and/or business partners, including those located in other countries, are required by agreement to protect the privacy of your personally identifiable information as set out in this Privacy Statement.
Choice
The NMDP will not use or share the personally identifiable information provided to us online in ways unrelated to the ones described above without letting you know beforehand and offering you the opportunity to withhold your consent for NMDP to use your information in this way.
Security
The NMDP is committed to ensuring the security of your information. To prevent unauthorized access, maintain data accuracy and ensure the appropriate use of information, we have put in place appropriate physical, electronic and managerial procedures to safeguard and secure the information we collect online. This includes the use of Secure Socket Layer (SSL) software, which encrypts the information you submit to keep it secure during transmission.
